If you wish to contact us:

For a faster response, send an email from your own (your usual) mail client to:
alsnewdrug(AT)aol.com

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Important information

Based in Europe, the RC Charity has no connection with any other entity, charity or corporate, and has no external financial support. Being privately funded by three persons and run by a voluntary unpaid trustee, and the public nor any ALS victim have ever been asked for money, there is no requirement to register ​​the charity and incur the associated administrative costs (Registration, trustees, auditing etc.).

The humanitarian objective is to bring a potentially new horizon to those affected by ALS (also known as MND) - irrespective of their financial status. Provided free of any charge on first come first served basis (when funds are available) to any MND/ALS victim who asks for help, only subject to having a credible case history, a confirmed diagnosis, informed patient consent and a valid prescription from a neurologist or medical doctor.

Web sites cost money to optimise. This web site is not intended to be viewed on mobile devices.

As a many years are covered in this site, precise data statistics vary at different times. This site is published about once per year. 2016 ALSTDI page added. 2017 Edavarone comparison page. 2020 Efficacy chart updated, 2021 Family 127 added. 2022 ALSFRS-R added. ​​​ ​​

NOTE: Nothing in this web site may be considered to be medical advice. You must always consult with your neurologist or doctor.

There is another registered domain: www.RCH4als.com, intended to provide information for those diagnosed with ALS/MND and is voluntarily sponsored by PALS around the world treated with RCH4. You may wish to join that group. That web site has no connection with us, however use of the drug name `RCH4` in that domain name is used with the permission of this charity.
Further independent RCH4 patient experience, comment & information is available at Patients Like Me ​

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